ME/CFS
Long COVID
(includes MCAS, Histamine Intolerance & Hypermobility)
American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES)
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Main page: https://ammes.org/
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Financial Crisis Fund: https://ammes.org/ammes-financial-crisis-fund/
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Documentary
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Unrest: https://www.unrest.film/
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Web Resources
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ME/CFS+ Brain Spine Facebook group (created by Jen Brea): https://www.facebook.com/groups/1353765701467793
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Solve CFS: https://solvecfs.org/
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Minnesota ME/CFS Alliance: https://www.minnesotamecfs.org/
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Health Rising (Cort Johnson): https://www.healthrising.org. Note: there are links to many other good orgs here, as well as ME/CFS, Fibromyalgia and Long COVID-literate clinics.
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Pace and Be Present: https://paceandbepresent.com/ (blog about practicing meditation/mindfulness for those with chronic complex conditions like ME/CFS and Long COVID)
Books to consider:
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Diagnosis and Treatment of Chronic Fatigue Syndrome and ME by Dr. Sarah Myhill (it's a bit dense for lay people, but still might be helpful for some)
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From Fatigued to Fantastic by Dr. Jacob Teitelbaum
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Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity by Lawrence Afrin, MD
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Specialty clinics - more relevant to someone who doesn't have an ND on their team, but helpful to know anyway:
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Stanford ME/CFS Clinic: https://med.stanford.edu/chronicfatiguesyndrome.html.
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Dr. Nancy Klimas: https://www.nova.edu/nim/clinic/klimas-bio.html
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Bateman Horne Center: https://batemanhornecenter.org/