ME/CFS
Long COVID
(includes MCAS, Histamine Intolerance & Hypermobility)

American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES)

• Main page: https://ammes.org/

• Financial Crisis Fund: https://ammes.org/ammes-financial-crisis-fund/
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Documentary

• Unrest: https://www.unrest.film/

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Web Resources

• ME/CFS+ Brain Spine Facebook group (created by Jen Brea): https://www.facebook.com/groups/1353765701467793

• Solve CFS: https://solvecfs.org/

• Minnesota ME/CFS Alliance: https://www.minnesotamecfs.org/

• Health Rising (Cort Johnson): https://www.healthrising.org. Note: there are links to many other good orgs here, as well as ME/CFS, Fibromyalgia and Long COVID-literate clinics.

• Pace and Be Present: https://paceandbepresent.com/ (blog about practicing meditation/mindfulness for those with chronic complex conditions like ME/CFS and Long COVID)
   

Books to consider: 

• Diagnosis and Treatment of Chronic Fatigue Syndrome and ME by Dr. Sarah Myhill (it's a bit dense for lay people, but still might be helpful for some)

• From Fatigued to Fantastic by Dr. Jacob Teitelbaum 

• Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity by Lawrence Afrin, MD

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Specialty clinics - more relevant to someone who doesn't have an ND on their team, but helpful to know anyway:

• Stanford ME/CFS Clinic: https://med.stanford.edu/chronicfatiguesyndrome.html. 

• Dr. Nancy Klimas: https://www.nova.edu/nim/clinic/klimas-bio.html

• Bateman Horne Center: https://batemanhornecenter.org/